Showing posts with label Down Syndrome. Show all posts
Showing posts with label Down Syndrome. Show all posts

Thursday, April 30, 2009

We all do it

Blogging Against Disablism Day, May 1st 2009

We all do it. We don’t mean to, but we do.

The audience and judges sneered when contestant Susan Boyle walked on stage on Britain's Got Talent. When she started to sing, the sneering quickly turned to awe. In the days that followed, discussions took place about how superficial we all were to laugh at her, since it turned out she possessed exceptional talent. The consensus seemed to be that, as Ms. Boyle was an extraordinary singer, it was wrong to snicker at her perceived lack of social graces and unglamorous appearance.

Hmmm…so, it’s OK to laugh at someone who looks different and who doesn’t possess exceptional talent?

A mother with a happy, smiling baby with Down Syndrome overhears other mothers talking in the park, “There but for the grace of God go I.”

A family with a child with Down Syndrome is less graced by God? Really?

On The Tonight Show, President Obama discussed his bowling score of 129 with some self-deprecating humor, "It was like Special Olympics or something."

I wonder….would this thoughtful leader have put himself down in jest by saying "Man, I bowl like a girl!" I doubt it; he knows in his heart one doesn’t put down another or even oneself, by calling someone “a girl.” And, if he slipped, Americans across the country would let him know that girls are not inferior beings.

An article in the May 2009 Diabetes Forecast focuses on the discrimination in employment against people with diabetes. It is an informative discussion about the necessity of the Americans with Disabilities Act Amendment Act and its protection of workers’ rights However, the author, almost in hushed tones, seems to need to make the point that people with diabetes aren’t really disabled. They just need the law to have a fair workplace.

What’s so terrible about having a disability, about being in that group? What’s so terrible about needing an accommodation to level the playing field, to do the essential functions of one’s job? The unemployment rate among people who are blind is 70%. Provide accommodation for insulin, snacks, and low blood sugar, but not provide text-to-read programs or Braille accommodations?

Why do we not want to be seen to be like others who are different? Can we not look a little harder to see that we share a common humanity?

Violence against children and adults with noticeable differences is much higher than against those without noticeable differences; it is prevalent in our neighborhoods, our schools, our homes. One Texas institution even ran a coordinated “fight club,” treating their clients like dog-fighting entertainment.

We, of course, don’t condone this violence, we may not even see its enormity. But we need to be aware of it. When people are beaten because of race, religion, or sexual orientation, it’s classified as a hate crime. Can we not demand that beating of people with disabilities be treated similarly?

Legislative opportunities to support our citizens with disabilities abound. The Community Choice Act would allow people the option to receive support services in the home. The United Nations Convention on the Rights of Persons with Disabilities recognizes the essential human rights of all people. The convention has been open for signatures for more than two years, and 139 countries have signed, but not the United States.

Where are our priorities?


On this Blogging Against Disablism Day, I ask myself – where is my ableism? How do I reflect the deeply ingrained prejudices of my culture? Where am I an ableist in my individual actions? In my community actions?

I give you the same challenge. Ask the tough questions.




This post is part of a worldwide blogging phenomenon, Blogging Against Disablism Day. Be sure to head over to Diary of a Goldfish to read more perspectives on ableism/disablism. Thanks, Goldfish for your extraordinary efforts again this year.

Links: my BADD 2007 post and BADD 2008 post

Friday, August 29, 2008

"Difference is an Artist's Game"

A beautiful video created by Clara Sigmon, a 13 yr old, about her brother David, who has Down syndrome. I found this video via Michelle who says, "it is very powerful and well-written/spoken." I agree! It's 4 minutes long, but well worth the time.

Saturday, February 23, 2008

Caught in the act!

Be careful ... you never know when Dave Hingsburger might be watching!

"Oh, God, I'm going to read about this in your blog aren't I. Oh, God."


Hilarious!

Sunday, May 20, 2007

Friends' true views come out when a child gets sick

Update - Cicely came through her surgery well, and her mom shares the hospital experience here. The mom learned more about the ableist world than she'd care to believe is true. She also thanks everyone for their prayers.


"God is taking your burden away."

"Maybe it's for the best."

Dave Hingsburger shares a painful letter from parents who are shocked to hear these horrible comments from friends when their previously healthy little girl, Cicely, suddenly becomes very ill.

The mom asks Dave for "loud prayers" - for people to pray for Cicely and wish her and her family well.

Dave prays loudly and beautifully for Cicely, her family, and our world. "I pray that all the prayers today for Cicely, for her mother, for her father, be loud enough to shatter prejudice and bring down preconceptions. I pray that they are loud enough that barriers tumble and doors are blasted open."

Amen.

I join in prayer for Cicely, her family, and our world.

Wednesday, March 21, 2007

3-21 World Down Syndrome Day

UPDATE: Here's a blog written by Edward Barbanell, an actor who has Down Syndrome and who has been writing a blog for more than a year. Thanks, Michelle.

Today, March 21, is World Down Syndrome Day.

From Down Syndrome International,

"Down Syndrome International (DSI) has officially earmarked 21 March as World Down Syndrome Day (WDSD). The date was chosen to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21st chromosome and is used synonymously with Down syndrome. Singapore was selected to launch the inaugural WDSD in 2006. The event, held at the CHIJ Secondary School in Toa Payoh, in the heartlands of Singapore was very successful and well attended. Many other organisations worldwide joined in the celebrations with events and activities in their respective countries.

This year the theme for 21 March 2007 is "Celebrating Diversity", to continue creating awareness about Down syndrome and promote acceptance of diversity.

All DSI members and related organisations worldwide are encouraged to observe the WDSD together with the community in an appropriate manner.”

Other Down Syndrome advocacy organizations:
National Down Syndrome Society and National Association for Down Syndrome

Blogs by parents with children with Down Syndrome:
(I could not find any blogs written by people with Down Syndrome.)

Big Blueberry Eyes
Down Syndrome Life
Postcards From Holland
The Education of Emma Sage
Jaden’s Journal

Welcome to Holland is Emily Perl Kingsley's famous story comparing the experience of her son Jason's Down Syndrome with an unexpected trip to Holland.

Friday, March 09, 2007

"in some sense, we should all just be people... "

Natalia, from My Spanglish Life, made this comment to my Disability and Gender Stereotypes post for Blog Against Sexism Day.

Natalia gives a link to a wonderful story illustrating that point. A shopper and a sales clerk are at a loss for what is the appropriate gift for a newborn with Down Syndrome. A helpful stranger, Dave Hingsburger, has the perfect gift suggestion.

Monday, February 19, 2007

A Day at Work


I interviewed Chris and his mom, Sheila, (real names used with permission) about Chris's job. Chris is a mail clerk for Rotary International. He has had this job since 1993. He works 40 hours a week, has full healthcare benefits, and paid vacation time.

Chris describes a typical workday:

7:00 a.m. - Chris gets up, has breakfast, and puts on a white shirt and tie.
7:45 a.m. - Chris walks to the bus stop, takes bus #204 for a 15 minute ride, and then walks a few blocks to work.
8:30 a.m. - Chris signs in.
8:30 a.m. - 9:30 a.m. - Chris works in the mail center, opening mail, sorting incoming mail and interoffice mail by department, sorting the outgoing mail by cost center, and using the mail machine to seal and stamp mail.
9:30 a.m. - First mail run of the day. Pushing his mail cart, Chris takes the freight elevator to deliver mail to the departments on the 18th, 17th, 16th, 15th, and 3rd floors. After the mail run he returns to the mail center for more sorting work.
11:00 a.m. - Second mail run of the day.
12:00 p.m. - 12:30 p.m.- Chris takes his lunch break in the cafeteria.
12:30 p.m. - Back to work in the mail center.
1:30 p.m. - Third mail run of the day.
3:00 p.m. - Fourth mail run of the day.
4:00 p.m. - Last mail run of the day.
5:00 p.m. - Chris heads home on the bus.

Chris is very dedicated to his work. He is always on time and is rarely absent. His professionalism is appreciated by Rotary International. Chris has an excellent memory for names and knows almost everyone in the company. He loves his job and loves the people he works with.

Payday is every other Friday. Chris deposits most of his paycheck into his bank account, taking out a small amount for his wallet. He uses his money to buy his lunch and soda at work, take his parents out to dinner occasionally, and pay for his YMCA membership.

Chris got to where he is today with hard work on his part and a team effort with his parents, his school and his community. He got his first job at 13 years old, picking up the mail from his church, then crossing two streets and delivering the mail to the post office. Chris’s school and his mother worked together to set up many job training opportunities for him. Over the years, he worked one to three hours a day as a mail clerk at a nursing home, in food service at a school, at his local university, and in other jobs in his community. In addition to learning job skills, Chris learned how to cross streets, take public transportation, and he explored his likes and dislikes.

Since Chris had always enjoyed delivering mail, Sheila thought working at Rotary International as mail clerk might be a good match for him. In addition, Rotary was at a location that Chris could get to independently. In April of his last year of school, Chris began training to work for Rotary. His job coach from his school helped to develop the job, break it down into smaller pieces, and teach him the whole process. The job coach provided Chris with full support initially and gradually withdrew his support as Chris became more comfortable with the job. In June of 1993, Chris finished high school and started working full time for Rotary International. Coming up on his 14th anniversary, Chris is a valued member of his company.

“I’m proud of myself. I love my job,” Chris says with a smile.


Top photo from Steve Liss, other photos from Sheila