Wednesday, April 30, 2008

Mistaken Identity

Blogging Against Disablism Day, May 1st 2008

I've seen it happen to able-bodied people once in awhile. Someone approaches and starts a conversation, and after a moment or two of confusion, there's a realization that the approaching person has mistaken my friend or family member for someone else – someone of the same race, similar height and weight, similar age, similar facial characteristics.

“I’m not who you think I am; you’ve got me mixed up with someone else.”

Humbly backing away, the bewildered individual is embarrassed and apologetic, “How silly of me! I’m so sorry.”

It might be surprising to hear that I have never been confused with a person of my same build, same age, same facial characteristics, same race. But, I, a brown-eyed, light-brown-haired white male, have been confused with males significantly larger than me, smaller than me, older than me, younger than me, and surprisingly, even of different ethnicities! A blond child, I was often mistaken in my own school by teachers, staff, and students for a dark complexioned student of Laotian descent who was much smaller than me, or, with an older blue eyed student who was 40-50 pounds heavier than me. Over the years, I have been mistaken as well for a black male and a male of Egyptian descent by people who know one or both of us. And, when I travel, strangers often mistake me for someone they know; it’s a regular part of visiting a new place.

My silliest incident of mistaken identity occurred when I was an audience member at a theatrical production. The show’s lead actor, onstage for most of the 2 ½ hour production, had just completed his final bow. The curtain closed; the lights came up and the crowd slowly started to leave the packed auditorium. A woman maneuvered her way over to me and said, “You have a wonderful voice.” She kept talking, and it took me a few minutes to process that she had confused me with the lead actor, a black-haired teenager of Indian descent with a very small build. Not only would the actor still have been in full costume, he would have had to do a major leap over the audience to get to the back of the theatre in such a short time.

How could this happen, you wonder? Why these repeated bizarre mix-ups??

Because in all these cases, both I and the person I am mistaken for, use a wheelchair.

And, in most cases, after I tell the offender, “You have me mixed up with someone else,” the response is not apologetic. No embarrassment. Just a laugh at the “coincidence” of it all. They seem to think that theirs was an obvious, easy, natural mistake that anyone would make.

You see, when you use a wheelchair, some people don’t look you in the eye, don’t take in your personal physical characteristics, let alone see you as a unique distinct complex individual. They see the equipment, not the person.

And this inability to see is where ableism starts.

I have come to believe that seeing someone for only the equipment, or for just one piece of his or her external appearance, is a root cause of discrimination. Seeing a wheelchair, a white cane, a speech impediment, a gender, a skin color and then making an assumption that we now know the individual gets us into trouble. When we believe that we know someone’s identity and that they and their “group” are one, not only are we wrong, we are arrogant and we open the door to justifying to ourselves our superiority. There begins the slippery descent down into the swamp of dehumanization.

If you have a story about mistaken identity, feel free to share it in the comments.

Be sure to check out the other posts for Blogging Against Disablism Day 2008. Thanks Goldfish for once again organizing this amazing event!

New to the blogroll

With the busy-ness of life, I've gotten behind on updating my blog.

Here are a few additions to my blogroll:

Radar: The Disability Network - This is a new blog from RADAR, the disability rights network of the U.K. They have a vision for, "a just and equal society whose strength is human difference." The blog has a varied mix of noteworthy stories.

Also from the U.K. - Ableize - a "resource directory of disabled aids information products services and advice," run for and by persons with disabilities.

Coping with disability has original articles on living with cerebral palsy, and also regular updates on and links to a variety of health, disability, and social news.

Disabled Soapbox - A wealth of advocacy for disablity rights, including right now the coverage of ADAPT activists advocating for (and being arrested for rallying about) the Community Choice Act in Washington, DC.

Bits and Pieces of Me is a blog written by a mom sharing her experiences as the parent of Lena and Kassie, her twin daughters born very prematurely.

My Disability Blog shares a wealth of information about disability and the social security system. Tim's most recent post, Being Prepared for a Social Security Disability Hearing, discusses the process and how to be best prepared for success.

Sunday, April 27, 2008

Calling you: Blog against ableism/disablism!

Blogging Against Disablism Day, May 1st 2008
On May 1, Goldfish will host the 3rd Blogging Against Disablism Day. (You can check out the last two B.A.D.D.s from the links in my sidebar.) This is a day of coming together to write about discrimination against persons with disabilities, also known as ableism or disablism. Last year more than 170 people wrote on a range of topics covering personal experiences, societal experiences, education, health, children, intersections with racism and sexism and more.

I really encourage YOU to share your thoughts and experiences. If you have a blog, read the details and sign up over at Diary of a Goldfish. If you don't have a blog, I'd be happy to post your writing here - just send me an email (address in my profile). This is a time for solidarity and support of one another. I especially encourage parents and allies to contribute. You don't have to have a disability to be opposed to discrimination against people with disabilities. All are welcome.

A note on language - there is a whole assortment of language about disability - handicapped, disabled, disability, etc. etc. May 1 is a day of language amnesty, write in the way that works for you. Goldfish has put together a language guide for reference.

Hope to see you May 1!

Friday, April 25, 2008

Carnival #36!

Disability Blog Carnival #36 is up over at Abnormal Diversity. The topic is a difficult one - ABUSE. Yet, it's such an important topic. Abuse of persons with disabilities, both subtle and overt, both by individuals and by society is incredibly prevalent, and also incredibly unacknowledged. I especially identified with terror and vulnerability of Kay's post.

Unfortunately, I've been very busy and didn't have a chance to write a post for this carnival. And a few people have emailed me about my blogroll - I haven't had a chance to update it in a while, but I will soon.

The next carnival will be on the topic of Disability and Identity. Head over to Crip Chick's for the details.

Friday, April 11, 2008

Carnival Time!

Disability Blog Carnival #35: The Hardest Part"A diamond is the ultimate gemstone, having few weaknesses and many strengths. Formed under pressure, the diamond is the hardest substance found in nature. There is nothing on earth that is stronger, more durable and enduring than diamonds. An uncut diamond represents the untapped potential that lies in all of us."
-Jodi Reimer

Head on over to Carnival #35, "The Hardest Part." I have been too busy with school to post, but lots of other bloggers have written great stuff on the topic of "The Hardest Part." Jodi Reimer, at Reimer Reason, has put together a wide assortment of posts on personal issues - pain, loneliness, vulnerability, lack of privacy; family expectations; health care providers; and the ever present societal issues of prejudice and discrimination. When life settles down for me, I'll be checking out the posts. I hope you'll head over, too.

Sunday, March 30, 2008

A Blogswarm on the UN Convention on the Rights of Persons with Disabilities

One year ago today, the United Nations Convention on the Rights of Persons with Disabilities was opened for signatures. It had been adopted by the U.N. in December, 2006, and on March 30, 2007.


"There were 82 signatories to the Convention, 44 signatories to the Optional Protocol, and 1 ratification of the Convention. This is the highest number of signatories in history to a UN Convention on its opening day. It is the first comprehensive human rights treaty of the 21st century and is the first human rights convention to be open for signature by regional integration organizations."



The goal of the convention is a simple one - recognize persons with disabilities as people - people with rights. You can find the complete document and also answers to frequently asked questions about the convention are answered are answered at the U.N.'s Enable site. To date, 17 countries have ratified this important human rights convention.


I hope you'll head over to Ratify Now for a blogswarm. What's Ratify Now? If you read the first comment below, Andrea explains that it is an organization with worldwide membership focused on the ratification of the Convention for the Rights of Persons with Disabilities. What's a blogswarm? Head over and you won't be disappointed. You'll find information about the convention and the thoughts and perspectives on this historic convention of writers from around the world.


And the United States? We have not ratified the convention.



Check out the blogswarm!

April 2 - Edited to clarify Ratify Now.

Thursday, March 27, 2008

Carnival time!


The 34th Disability Blog Carnival is up over at Andrea's Buzzing About. The theme is "Breaking Out." Lots of great links. I hope you'll check them out!

Friday, March 14, 2008

Governor-designate Paterson

From the New York Times: 'David A. Paterson in his first news conference as governor-designate on Thursday, a day of busily preparing for the transition'

On Monday, March 17, 2008, David Paterson will be sworn in as governor of New York. He will be the first legally blind governor in U.S. history.

Fifty-three year old Mr. Paterson has been blind since childhood when he had an infection in his eyes. In a New York Times article, Mr. Paterson says, "I don't act the way I did when I was 17, like I can do everything myself, because I realized the minute I do that, no one helps me. So I learned to be a little more pragmatic about life." Mr. Paterson receives his briefings via lengthy voice mail messages from his staff, and so that he doesn't need to use notes, he memorizes all his speeches. He also says that he has felt more discrimination from his blindness than from his race.


Steve Kuusisto shares his thoughts on Paterson's governship in an op-ed piece in today's New York Times.
"New Yorkers will no doubt discover that Mr. Paterson will take great interest in the details of governance and that this will require him to take sincere interest in people. He'll ask more questions than your average politician. And those who work in his administration will find that they are important not simply for knowing things but because they can describe how they learned those things in the first place. That's perhaps the most important thing for the public to understand about professionals who are blind -- we are by nature tireless in acquiring information, and we remember virtually every detail of what we read or hear."

For further interesting information - Penny Richards offers a comprehensive list of blind elected officials through history over at Disability Studies.

Thursday, March 13, 2008

Carnival Day!



Head on over to Wheelie Catholic for the 33rd Disability Blog Carnival, "Appreciating Allies." As usual, lots of posts from lots of perspectives. Check it out!

Wednesday, March 12, 2008

Helen Keller photo discovered

photo of 8 year old Helen Keller, holding a doll and sitting next to her teacher Anne Sullivan
Last week, the New England Historic Genealogical Society released this wonderful photograph of a young Helen Keller vacationing in Massachusetts in July, 1888. She is sitting outside on a chair and holding a doll. Her teacher, Anne Sullivan is next to her. Interestingly, "doll" was Helen's first signed word, in March of 1887. You can read the full story here - it covers some details about Helen's life and also the story behind the photograph.

Friday, March 07, 2008

Bang Long - gentle, tough, inclusive

Bang Long and I at the CCDI Conference May, 2007

Bang Long, Jr. died last Friday. Mr. Long was a tireless advocate for the rights of people with disabilities. According to his obituary in the Chicago Sun-Times, he was born in 1943. He had a long history of being an advocate for humanity. He had worked as a nurse’s aide in Memphis, helping people cope with tear gas during a riot that occurred while Martin Luther King Jr was in town. He was present for the signing of the Americans with Disabilities Act and was very active in disability rights in the state of Illinois.

I had the pleasure of meeting Bang Long at last year's Coalition Of Citizens with Disabilities in Illinois (CCDI) Conference. He presented me with the Markeeta Award, an annual Illinois award given to a young disability advocate. Mr. Long welcomed me to my first conference and was encouraging and kind. Many years ago, he had worked with Markeeta Vincer and her family in her pursuit for inclusion in the Chicago public schools.

Cilla at My Big Noise shares her recollections of Bang Long. They had been friends for 20 years, and she recounts his asking her to dance, and his varied activism experiences.

I only met Bang Long that one time, but he left an impression on me. He was gentle, tough, inclusive, and welcoming. I am thankful that Mr. Long requested that we take the above picture.

I am grateful to have had the opportunity to meet Mr. Long. A lesson I learn from him is that advocacy for our fellow humans is a lifelong endeavor, and comes in many different forms - disability advocacy is just one form. As fellow humans, we each other’s allies and supporters.

Rest in peace, Bang Long, Jr. Thank you.
Edited to add 2 more reflections on Bang Long: Karen Putz (aka Deaf Mom) and Valerie Brew-Parrish

Friday, February 29, 2008

Inclusive Theatre

Working Logo - large block letters WORKING with people on top of the letters showing different types of work Tonight I saw the musical Working at Dominican University. I love Studs Terkel's books, and this production was very enjoyable. What was particularly cool was that this musical was signed. One of the interpreters was an ensemble performer - she danced and signed- and the other was in the traditional American Sign Language role, a little off to the side of the stage interpreting what was spoken and sung. This is the first time I have ever been to a play or musical that was signed, and it was great to see it at my college!

There's one more performance tomorrow at 3pm. For anyone who lives in the Chicago area (Karen?), it would be a great way to spend the afternoon. Tickets are only $15. The show is about 1 1/2 hours long.

The logo above is from Working the Musical website.

Thursday, February 28, 2008

Carnival Day!


The 32nd Carnival is up! Shiloh at Sunny Dreamer is hosting, with the theme, Standing Outside the Fire. Lots of links to a variety of great posts. Hope you'll head over!

Monday, February 25, 2008

Dave's Faves

Dave's Faves
A few good reads:



Another study on the employment of people with disabilities -

"In a first-of-its-kind study unveiled to Chicago-region business leaders on January 28, a team of researchers at DePaul University discussed research results that found employees with disabilities from the healthcare, retail and hospitality sectors in the region were just as dependable and productive as employees without disabilities. In addition, researchers also discussed research results that showed accommodation costs associated with workers with disabilities were often minimal and well worth the expense."


I got that link from Access Living, which also had a link to a story about Marca Bristo, being honored as a Chicagoan of the Year.

Another great read from Steve Kuusisto: How to Write Able-ist Prose.
It starts with,
"I once knew a disabled (insert "Man" "Woman" "Child" HERE)."


And, a new blog: Crimes Against People with Disabilities, It's time to speak up... Yes, indeed.

Sunday, February 24, 2008

Book Meme

Connie tagged me awhile ago in the book meme, and I'm finally getting to it. Here are the rules:
Go to page 123 of the nearest book.
Find the 5th sentence. Write down the next 3 sentences.

I have a lot of books near me, and several are textbooks. Who wants to hear sentences from A Sequence for Academic Writing? So, I thought I'd pick up my fellow blogger friend, Steve Kuusisto's book, Planet of the Blind. It's Steve's memoir, and it's a great read.

"'The brave one sleeps for a time/Of course the past is with her, /Beauty
dissolved into thingness, narrow streets/Where she goes disguised.'
He pauses.
"Oh please!"

Good thing the meme doesn't ask for the next sentence, as this is a G rated blog.

Now I tag Josh Winheld, Emma, Andrea, Karen Putz, and Seahorse.

Saturday, February 23, 2008

Caught in the act!

Be careful ... you never know when Dave Hingsburger might be watching!

"Oh, God, I'm going to read about this in your blog aren't I. Oh, God."


Hilarious!

Thursday, February 21, 2008

Josh Winheld on Duchenne Muscular Dystrophy

Josh Winheld has been sharing his thoughts about living with Duchenne Muscular Dystrophy in yesterday's New York Times and also the Philadelphia Inquirer. Check out Josh's blog for the links and his views on the NYT story and the Inquirer coverage. You can also learn about Josh's recently published memoir, Worth the Ride: My Journey with Duchenne Muscular Dystrophy.

Thursday, February 14, 2008

31st Carnival!

Head on over to Emma's blog, Wheelchair Princess, to see the latest carnival, Superman. Lots of great stuff on this interesting topic. Enjoy!

From the carnival:


I can’t stand to fly
I’m not that naive
I’m just out to find
The better part of me

I’m more than a bird:I’m more than a plane
More than some pretty face beside a train
It’s not easy to be me

Wish that I could cry
Fall upon my knees
Find a way to lie
About a home I’ll never see

It may sound absurd:but don’t be naive
Even Heroes have the right to bleed
I may be disturbed:but won’t you conceed
Even Heroes have the right to dream
It’s not easy to be me

Up, up and away:away from me
It’s all right:You can all sleep sound tonight
I’m not crazy:or anything:

I can’t stand to fly
I’m not that naive
Men weren’t meant to ride
With clouds between their knees

I’m only a man in a silly red sheet
Digging for kryptonite on this one way street
Only a man in a funny red sheet
Looking for special things inside of me

It’s not easy to be me.

Emma says,

"To me, that song is a song that sums up disability. Or at least the way in which we can appear to the people who don’t take the time to get to know us properly, to get beyond our exterior and see who we really are inside."


So, go to the carnival and see more wonderful insights!

Tuesday, February 12, 2008

Man dumped out of wheelchair by police officer

Check out this CNN story with video of a quadriplegic dumped out of his wheelchair because the police officer apparently didn't believe he was disabled. Incredible!

Update: Brian Sterner, the man who was dumped out of his wheelchair, was on the Today Show this morning. I didn't see it, but here's the link. Other links to coverage of this abuse can be found at Scott Rains' blog.

Another update: Ruth at Wheelie Catholic shares her stories of people not believing her disability and being abusive, including one time when she broke both her wrists. Her incidents just weren't caught on camera.

Monday, February 11, 2008

A positive employment story

ABC World News had a story tonight about the Walgreen's Distribution Center in Anderson, South Carolina.


"Though the job market continues to be a bright spot in an otherwise
troubled economy, with the unemployment rate still just 4.7 percent, the national unemployment rate for disabled Americans is more than 44 percent.
Almost two decades after the first President Bush signed the Americans with Disabilities Act into law, disabled Americans continue to face enormous barriers in the workplace. But in this building, abled and disabled workers do many of the same jobs and earn the same pay."

This Walgreens is different. 700 employees and 40% have a disability. Check out the video or the written transcript. It's well worth a look. I would have liked to have seen more about the training, accommodations, and profitability of the employment. It looks like the employees are very satisfied, and I imagine turnover is very low.

Walgreen executive Randy Lewis speaks of the success of the effort and says that any company could do what Walgreens is doing. He says,
"This building is not about charity. It's about opportunity."
This is so much better than how Walgreen's competitor addresses employment and disability issues. Way to go, Walgreens!