The Idea

The idea to interview people with disabilities took root about four years ago. At the time, I was feeling discouraged during a long recuperation from a difficult surgery. Lying around in pain gives one time to think.

I was reading some of the stories from Studs Terkel's book, Hope Dies Last. I was deeply moved by the candid stories that people, both ordinary and famous, told about finding hope in difficult situations. Kathy Kelly, a peace activist, shared her experiences with Voices in the Wilderness; Congressman Dennis Kucinich talked about an unpopular, yet courageous decision he made while mayor of Cleveland; Quinn Brisben, a retired Chicago high school teacher, reflected on his years working in the inner city.

Intrigued with people’s personal stories, I checked out Studs Terkel’s Working, from the library. A janitor, a film critic, a baseball player, a waitress, a farmer and more discussed openly the ups and downs and individual stories of their work-lives. It was so interesting to hear these personal stories.

Each of us has stories. Life is both ordinary and extraordinary, and as unique as each person. Why would a disability change that? Society has a tendency to simplify life with a disability as either “pitiful” or “inspirational”. Neither is true.

I decided that I would love to listen to the individual stories of people with disabilities, their personal reflections and thoughts. To hear the story first-hand is what I want to do. I wrote to Mr Terkel about my idea and his response overwhelmed me. I couldn’t believe it when I received both a letter and a phone call from this wise, generous person. He enthusiastically encouraged me to go forward with my project. When I asked for advice from his years of experience, Mr. Terkel said the key to a strong interview is to be a good listener. Thank you, Mr. Terkel, I’ll try my best.