tag:blogger.com,1999:blog-34418484.post116164151611215165..comments2023-08-01T06:37:08.027-05:00Comments on Growing up with a disability: To cure or not to cure, that is the question.Davidhttp://www.blogger.com/profile/09360723110664693186noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-34418484.post-1161996100675667112006-10-27T19:41:00.000-05:002006-10-27T19:41:00.000-05:00David I am certain that my attitude to the cure or...David I am certain that my attitude to the cure or not is in no way affected by whether a cure is available or not. More, it is a reflection of my own state of happiness and well being.<BR/><BR/>JohnJohn and Suzannehttps://www.blogger.com/profile/14119485343166463993noreply@blogger.comtag:blogger.com,1999:blog-34418484.post-1161920334271794112006-10-26T22:38:00.000-05:002006-10-26T22:38:00.000-05:00Thanks for your comment John. I think you are rig...Thanks for your comment John. I think you are right that society doesn't understand why we might be hesitant to take "the cure". I like Ashley's way of looking at it - picking and choosing what to address, not taking someone else's "cure". <BR/><BR/>For me, I'm comfortable using a wheelchair, but I'd like to get rid of some pain. Pain interferes with my life. That cure I'd take in a second if there were no drawbacks. <BR/><BR/>I understand what you are saying about being used to living as you are. I am used to living with this body, and I like the lessons I have learned.<BR/><BR/>This discussion is easier, of course, since there is no big cure for cerebral palsy or muscular dystrophy. <BR/><BR/>DavidDavidhttps://www.blogger.com/profile/09360723110664693186noreply@blogger.comtag:blogger.com,1999:blog-34418484.post-1161917674161115242006-10-26T21:54:00.000-05:002006-10-26T21:54:00.000-05:00David I have often wondered if I would "take the c...David I have often wondered if I would "take the cure" given the opportunity. I have muscular dystrophy and at 61 have been a wheelchair user for 10 years. Before that I stumbled and fell for about 10 years. I know where I would rather be!<BR/><BR/>One of the things I do for a living, among several things, is deliver disability awareness training to corporate and public sector Australia.<BR/><BR/>I often say to my course attendees, that I don't see myself as broken and I don't need fixing, as do many people with a disability. In fact I don't think I would take the cure if I was offered the chance. When asked why not I answer that I live a perfectly happy, functional and successful life without the use of my legs and with only 20% of normal upper body strength. So the question should really be, do I want to go through monumental change and upheaval that would come from being able to walk again? And I am reasonably certain the answer is no. <BR/><BR/>I heard a story about a woman who had been blind most of her life, recovering sight after an operation and being unable to handle the difference and causing acute depression. And I can understand how that might happen.<BR/><BR/>However let's face it, that group of people that I like to call "the severely able bodied" are never going to get that. It is just too ridiculous for words to them. <BR/><BR/>So it is nice to talk to like minded souls.<BR/><BR/>BTW my email address for anyone interested is johndlittle@bigpond.com<BR/><BR/>cheersAnonymousnoreply@blogger.com